Yes, I thought I needed to change the title a bit, since RSV is mostly a lung problem, even though it affected Ben’s heart somewhat as well.
Actually I could’ve added other areas being affected as well.
After being released from the hospital after the bout with RSV, and as happy as we were to have him home, it still didn’t mean he was well. It just meant he didn’t need to be in the hospital anymore. There’s a difference.
Although in his mind he was able to go back to work on Monday, his body was nowhere near ready. He was still exhausted, and just not feeling at all like himself. So he made the decision to take the week off to get his strength back.
Which was a good decision.
And because of the insulin shots they had to give him in the hospital because of the steroids he was being given, we also decided to get a glucose monitor for him due to his still being on the steroids making his blood sugar shoot up way in excess of 400, which is certainly not good.
But we had quite a bit of trouble getting the machine to operate properly. Neither of us had ever used one, and the directions were really difficult to understand. The help line actually was a huge help, but he still had trouble getting enough blood to register on the strip. And he was still not starting to feel much better.
Monday he also found himself having “brain fog” which we were told was common with RSV. He couldn’t concentrate, or remember things I’d told him, which was really starting to scare us both. Fortunately it only lasted a day.
We saw his pulmonologist on Tuesday and he prescribed a rescue inhaler for him, which was fortunate. But the doctor was pleased overall about how he was coming along so far, and reminded Ben it takes awhile to get over this virus. That’s for sure!
But Ben still wasn’t able to figure out the glucose monitor until Thursday. And he was still exhausted every day by the afternoon and still coughing quite a bit, even with heavy duty cough syrup.
Finally on Thursday he was able to get the glucose monitor to work. Only to get a blood sugar reading of 435. Not good. He tried again and got 421. Definitely not good. He called his doctor and the after-hours nurse told him to go to the hospital.
Here we go again.
The ER was busy of course. They took vitals, bloodwork, and then we waited. And worried. When we were finally called back to a room, his blood sugar was still high, so the doctor ordered fluids to try to get it down, explaining the steroids in combination with water pills for the fluid around the heart drove the sugar up, but the fluids should help get it down. Well, that would be better than another insulin shot!
And after five hours in the ER we were finally sent home, after the fluids lowered the blood sugar to a safer level.
Friday he was feeling a bit better and found out his doctor had called in a new prescription for blood sugar medication. Things were looking up.
Until the pharmacy called Saturday to tell us the Rx was written for 2.5 mg and the medication only comes in 5 and 10 mg, and the doctor’s office wasn’t open until Monday. We got that problem solved by cutting the pills in half.
Then we found out the inhaler he uses, which of course had only enough puffs left for two days, was out of stock in every pharmacy in the area because the manufacturer was limiting quantities. And his insurance wasn’t allowing our pharmacy to fill it as a generic until the doctor rewrote the prescription. Mind you, this is for the man who just got out of the hospital with lung issues!
Good thing he has the rescue inhaler!
So today will be a test. And hopefully he’ll pass and be well on his way to recovery.
More to come when his pacemaker needs to be replaced, which hopefully will be several months down the road.
Until then, we’re believing he’s going to stay well for a long time!